There has been a brilliant full moon the past couple of nights.
When I was a kid and there was a full moon, I always liked to keep my curtains open so it could shine on my bed at night. As an adult, I have enjoyed taking night walks with Dan in the winter during a full moon. But even that isn’t possible anymore due to my cold urticaria and purple toes. And right now, after the warm up and refreezing everything plowed out here is pretty darn slippery to walk on without grippers on your feet.
I have found out that a young family in our area has a little boy who has this same condition, only worse. They finally ended up at Mayo Clinic trying to get a diagnosis for him because local Drs told them various things; allergies, mold, colds. I haven’t had the opportunity to speak directly with the Mom. We have emailed but not to the point I’ve been able to find out what (if anything) they are able to do for the boy. I do believe she told me he was not on meds for this due to his age. His condition is worse than mine because it DOES affect his breathing if he is out in the cold. What young kid does NOT want to be playing outside?? They have to keep an “epi-pen” for him. In case you don’t know what that is for; Anaphylaxis is a severe allergic reaction marked by swelling of the throat or tongue, hives, and trouble breathing. When it strikes, life is at risk. And time is critical.
The person suffering from this reaction has to immediately give himself/herself this “shot” from the epi-pen. It is also suggested that a person suffering from a condition should wear one of those bracelets. I never even thought about that…but there are so many people who do NOT know what cold urticaria means, so I don’t know what further explanation could be put on a bracelet. I really hope I get a chance to talk with this family. This had to have been extremely scary for them, not knowing what was wrong, getting incorrect diagnosis’s (spelling??) and now that they know what IS wrong, letting the little boy out of their sight for any length of time, especially this time of year!
So, no, I don’t have it so bad but (among other things) I miss being able to take moon-lit winter walks. Maybe while we’re in North Carolina or in Texas next winter I’ll be able to do that…without the snow. Nah, it just won’t be the same!
On a brighter note, there is an RV EVENT being held in Escanaba starting on Thursday through Sunday this week. Dan and I are going to try to attend. IT IS BEING HELD INSIDE OR WE WOULD NOT BE ABLE TO GO (again, due to the hives thing). Maybe we’ll find our perfect “dream home” on wheels!
Our New Normal
4 weeks ago