I don't have the results back on the 11 vials of blood that was taken from me last week at the Petoskey hospital. I see the Rheumatologist again the end of May and as long as I don't hear anything from that office between now and then, I'm not going to worry about it. I've been worrying about this problem for 4 years and I'm tired of worrying about it. I just wish once and for all, some Dr, some "ologist" some place could give me an answer.
This Dr thinks it is Secondary Reynauds. With this particular Reynauds other diseases can "accompany" it; scleroderma (haven't looked that up yet), systemic lupus erythematosus or rheumatoid arthritis. The symptoms do tend to go with what I experience; the blood vessels in the fingers or toes or both become narrow and this keeps the blood from flowing so hence the cold fingers/toes. This doesn't answer the problem with the hives though.
So I don't really know any more than I did....and even if it IS secondary Reynauds, from what I can find out so far any treatment for it is NOT going to help my lack of an immune system which is what started this whole quest for answers 4 years ago. I had an immune system just like everyone else up till about 4 years ago....so it is very easy for me to get sick although FORTUNATELY, up till this past 3 months that has not been a problem. In the past 3 months I have had 3 colds. I even came HOME from our trip with a cold! It just came on me over night. I went to bed one night feeling fine, got up the next morning and my throat felt like it was on fire, now it is one of those colds that requires several man size hankies during the cours of the day!
While we were downstate, we found out that I-75 between Grayling and Gaylord had been closed due to a wild fire. When we came home that way, you could see the devesation (brought back memories from last August). Grayling was EXTREEEEEEMLY lucky; it sounds like the whole town could have easily gone up in flames. I haven't heard yet if it was caused by someone being careless or what started it.
Well, I guess that is all for now. Dan and I have to play catch up so we can get the campground open maybe by the weekend!
Our New Normal
4 weeks ago